Adam Regal fought so hard against Motor Neurone Disease not just for his own life – but to safeguard his family’s future.
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The Flinders man died last Thursday, but not before he’d helped raise $1.5 million into the debilitating condition which took the life of his father, and uncle, before him.
As the co-founder – along with his mate Matt Pridham – of the Firefighters Climb for MND, Mr Regal gave many an insight into the neurological disease which kills two Australians every day.
And with every dollar raised directly supporting the efforts of Macquarie University’s MND Research Centre, he’s helped boost research into a cure, or an effective treatment.
The climb of the Sydney Tower Eye will be held this year on October 20, and his wife Kylie has asked that in lieu of flowers for his funeral on Friday, family and friends donate to Team Regal on the event website.
On his fundraising page Mr Regal’s passion for helping others is obvious. “I was diagnosed with MND in 2013,” he stated. “I lost my dad a year before my diagnosis. My uncle Garry too beforehand to the same disease. No-one should have to go through a MND diagnosis”.
Mr Pridham, a Sydney firefighter who grew up in Kiama with Mr Regal, said he had been an inspiration to many.
“Adam made a huge contribution in the fight against MND – inspiring thousands to become involved in the Firies Climb,” he said.
“He was also a pillar of strength and support to many other MND patients around Australia – who reached out to him because of his positivity, and how realistic he was about coping with the disease.
“His legacy will create powerful change in the future of this disease. We will continue to fight in his honour.”
Mr Regal and his wife Kylie renewed their vows in Hawaii last October, with their children Ajai, 12 and Ciara, 8 by their sides.
“Adam was an amazing husband and father, who was always there for us no matter what,” Mrs Regal said. “He’s always been hardworking and dedicated at giving us everything we needed.
“He was my best friend and we have been there for each other for the past 18 years. He had such a funny sense of humour, he always knew how to make us laugh.”
To donate or participate in the Firefighters Climb for MND 2018, visit firiesclimbformnd.org.au