What is the price of her childhood?

By Andrew Elstermann
Updated May 4 2016 - 7:51am, first published 7:50am
Tough times: A decision not to fund a revolutionary medicine, Orkambi, through the PBS means the future for children living with cystic fibrosis like Bunbury's Milania Knapinski is now uncertain. Photo: Carien Lee Photography.
Tough times: A decision not to fund a revolutionary medicine, Orkambi, through the PBS means the future for children living with cystic fibrosis like Bunbury's Milania Knapinski is now uncertain. Photo: Carien Lee Photography.

BUNBURY families with children diagnosed with cystic fibrosis will have to pay $250,000 a year if they want to access a revolutionary new drug that improves the condition’s symptoms.

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